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Connect with type 1 diabetes research in Canada

Connect1d Canada helps people living with type 1 diabetes learn about Canadian research opportunities that may be relevant to them. 
 

Join Connect1d Canada today

By signing up, you can hear about studies, clinical trials, surveys, interviews, and other research projects. Signing up does not commit you to participate in a study. It simply gives you the choice to learn more when an opportunity feels like the right fit.

 

Your experience can help shape better T1D research

By signing up for Connect1d Canada, you are helping make it easier for people living with type 1 diabetes to learn about Canadian research opportunities that may be relevant to them.

As part of registration, you can answer two short questions about your experience with diabetes: how satisfied you feel with your glucose management, and how much effort it takes to manage T1D.

These questions are part of the Edmonton Assessment of Satisfaction/Effort with Diabetes, also known as EASE-D. EASE-D helps researchers better understand not only diabetes outcomes, but also the daily effort involved in living with T1D.

Connect1d Canada can help strengthen research by making it more timely, more relevant, and more connected to real-life experiences.

Built with the type 1 diabetes community

Connect1d Canada was shaped with people living with type 1 diabetes, parents and caregivers, healthcare professionals, and researchers from the earliest stages of planning.

Diabetes Action Canada did not want to build a platform for the community without the community. Through co-design, interviews, and advisory input, Connect1d Canada was developed to reflect what people with T1D said they wanted from research: clearer information, more transparency, more choice, and opportunities that respect the realities of daily life with diabetes.

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How it works

1. Tell us about yourself and your experience
This helps Connect1d Canada identify research opportunities that may be relevant to you.

2. Receive information about studies and research opportunities
Opportunities may include clinical trials, surveys, interviews, technology studies, observational studies, or other research projects.

3. Choose whether you want to learn more
You decide which opportunities interest you. You are never required to participate.

4. Connect with the research team
If you select “I’m Interested,” a research coordinator may follow up with more details, including eligibility, what participation involves, and next steps.

5. Stay informed when results are available
When possible, Connect1d Canada aims to support plain-language updates about what researchers learned, what the findings may mean, and what comes next.

Together, these steps can help make T1D research in Canada faster, more relevant, and more connected to the people it is meant to serve.

What happens after you sign up

Connect1d Canada helps connect people living with type 1 diabetes to Canadian research opportunities. Signing up is simple, and there is no onboarding or additional registration required.

Once you are registered, you may receive email notifications about studies or research opportunities that could be relevant to you.

Each opportunity will include plain-language information about the study, including what the research is about, who may be eligible, what participation may involve, and whether compensation or reimbursement is available.

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You decide what interests you

Receiving a study notification does not mean you are enrolled in a study. It also does not mean you have to participate.

If an opportunity interests you, you can select “I’m Interested.” A research coordinator may then follow up with more information, answer your questions, and explain the next steps.

The research team will confirm whether you meet the study’s eligibility criteria. You can then decide whether you want to consent and participate.

Your choice matters

Connect1d Canada is designed to make research opportunities easier to find and understand. You can choose which opportunities to learn more about, and you can say no to any opportunity at any time.

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Researcher of T1D

Researchers have told us that they struggle to connect with people living with T1D and recruit them into studies, sometimes taking years to find enough of the right people to complete a study or clinical trial in T1D. By joining Connect1d, we can help you by providing: 

  • Streamlined recruitment: Connect1d Canada can help streamline the recruitment process for your studies by connecting you with participants who have already expressed an interest in research.
  • Access to a large and diverse patient population: Connect1d Canada has a growing network of people with T1D across Canada. This can provide you with access to a broad and diverse patient population for your research studies.
  • Patient-centred research: Connect1d Canada is focused on involving people with diabetes in every step of the research process, from study design to dissemination of results. By getting involved, you can benefit from this approach and work collaboratively with patients to design and conduct studies that are more relevant and meaningful to them.
  • Connect1d Canada welcomes opportunities to share research from both non-profit and for-profit organizations. If you represent an industry-sponsored organization, please note that additional review and a listing fee may apply depending on the scope, recruitment goals, and target population of the study.

Diversity, equity & inclusion

Our aim is to make research represent the diverse community of people living with T1D. We work with our patient and community partners to ensure the inclusion and representation of those who have been historically excluded or underrepresented in research studies. Work with us to give every person impacted by T1D the opportunity to learn, contribute, and accelerate research.

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Patient Oriented Research

Connect1d Canada ensures that the values, needs, and preferences of people with lived experience are front and center. By co-creating Connect1d Canada with the diabetes community, we have built a platform for better participant engagement and retention than traditional research recruitment. This can ultimately lead to higher participant retention rates, better data quality, and improved outcomes for your research projects.

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Accelerate Recruitment

Connect1d Canada rethinks traditional recruitment approaches and brings you the ability to rapidly recruit participants from across Canada. Once your study is posted, you will easily see who in the community is eligible to participate, and who is interested.

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In partnership with 

The Canadian Institute for Health Research

The Canadian Institute for Health Research has funded this project as part of the Diabetes Action Canada.

University Health Network

This initiative was designed and developed by the Centre for Global eHealth Innovation and University Health Network in Toronto, Canada.

University of Toronto

We are proudly partnered with the University of Toronto.

JDRF

JDRF has generously funded this project.

Diabetes Action Canada

Diabetes Action Canada, a Strategic Patient-Oriented Research (SPOR) program, made this project possible.

Strategic Patient-Oriented (SPOR) Network

Diabetes Action Canada received funding for this program as a CIHR Strategic Patient-Oriented (SPOR) Network in Chronic Disease.

    We’d love to hear from you

    The Alberta Diabetes Institute is the home institution of Connect1d and the implementation partner.

    1-002 Li Ka Shing Centre for Health Research Innovation, AB, T6G 2E1.

    cnct1d@ualberta.ca

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